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Functional neurological disorder

Feb 12

Today I want to open little bit of my day to day heath struggles.

I have FND (functional neurological disorder). It is a beast of a disorder and can mimic lot's of other illness and disorders. I don't even know where to start.

Here is links for websites that are helpful.

(english)

https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorder (suomeksi) https://neurosymptoms.org/fi/


My main symptoms are:

  • seizures

  • dizziness

  • pain (especially in my legs)

  • difficulty walking / leg weakness

  • memory loss

  • fatigue

  • tics

  • anxiety

  • dissociation


This might sound a lot, but I still feel like I am forgetting something. The reason why I am talking about it now, is because my symptoms are little bit worse again. I had really good couple of months with little to no symptoms but now last couple of weeks has been worse. It started with daily seizures. I had one to two seizures everyday for a week. We believe it might be do to stress that triggered them. I was in a day hospital, but after a week not been able to attend to any groups, we decided that it would be better to try it later. So I dropped out. Last weekend we went to see Rolling Quartz gig with my friend. I felt like passing out couple of times but luckily I was able to push through. When I got home my legs hurt a little bit, but I didn't think much about it. Now my walking is bad again. Don't get me wrong I was so grateful for the couple months with good legs, but this hits me hard every time it happens. Now I just hope that my legs get better soon. One thing that is always hard for me is how much is it good to push myself. I never want to just give up to my symptoms, but sometimes resting is the best option. I feel like this post is just random post about FND but this is what my life is right now.


I also want to make videos to tiktok about FND and my other illnesses. I just don't know where to start there ether :P I also hope you enjoy new green theme on the website.



Feb 12

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